I had to rethink my organisation. No, there is no panacea and if there was we would have thousands of doctors with no patients, and empty hospitals, not to mention nurses with no one to care for. A cure for MS is not available, not even on the horizon, but a few helps. I can delay my illness with an injection, every two days. Apart from a few blue marks on certain body parts I manage quite well.
What I miss are my walks, only half an hour, but I was seeing the ducks and swans swmming on the local river, seeing trees grow and change their colours and birds flying. A walk up the path to the local castle and rest on a bench overlooking the farmlands. I can still do it, but I tire quicker and I like to take photos on the way, but with a stick in one hand it is difficult to pay attention to the focussing of a camera as well and a danger of falling.
My situation was not improving. I was in the village first aid society for many years. We were present at various local events as a safety measure. Being one of the few in the organisation that knew what a computer was, I also did the accounts for 5-6 years: not that I am an accountant, far from it, but I knew the ways of Excel. Knowing how to operate an account with about 20 links was something else.
And so I called our local chief first aid person for advice. I wanted a wheelchair. I did not want one of these strange objects on wheels looking like something to carry a supermarket basket. We call them a zimmerframe. My dad had one in his last years and I sometimes see golden oldies with them in town, but that is not my thing. Last week Mr. Swiss and I payed a visit to the place where you can buy or rent your wheelchairs and other aids. They were very helpful. Renting was almost more expensive than buying and so I chose my model on wheels with its own battery. There are a few additions to be made: a mirror on the arm rest, a holder for my cane in case I need to walk somewhere, and hard rubber wheels. The normal execution was with wheels that you would have to pump now and again, but I decided to pay the extra for wheels that would take me everywhere without that problem.
It is an outdoor wheelchair, but I have to park it somewhere and leaving it outside would not be very good. I have now changed my desk. I used to look straight out of the window but now the light comes from the left. I was surprised how well it works. I now have room to park my wheelchair behind me. There is a delivery of 2-3 weeks for the wheelchair and I am in no rush. When it arrives the gardners will be finished with our outside renovations and I will be able to sail out of the open window and turn left with access to the path. They removed a bush for the builders but I told the gardners I do not want it replaced. They can now cover that part of the garden with the large stones and gravel.
Life may not be good to us all, but where there is a wheelchair there is a way for me. I would add I can walk independently at home because I feel safe. In the big wide world I have to have my trolley to push in the supermarket, or something to give me confidence when moving. I seem to slow down daily.